Tag Archives: PKU

Washington Post: American mom raises $1 million for daughter’s rare genetic disorder after skiing 125 miles across Norway

A D.C. woman who skied 125 miles across Norway to raise awareness for her daughter’s rare genetic disorder returned to the comforts of home this week.

Alison Reynolds, 46, raised about $1 million — more than twice her original goal — from businesses, friends, family, and other supporters to fund research for phenylketonuria, often referred to as PKU, a metabolic condition afflicting her 17-year-old daughter. She started her ski adventure Feb. 21 and returned home to Northwest Washington on Monday.

She and a Norwegian ski guide skied almost 15 miles each day near the border with Sweden. They each pulled an 80-pound sled containing water, food and equipment, sleeping in a tent most nights. Reynolds said her guide told her she was in good shape for the adventure.

Read entire article HERE.